Week 24 PCR UNDETECTABLE Yippy!
Pretty sick last week. Had severe dizziness that gave me bad nausea. Just didn't want to get out of bed. Fatigue was really bad too. Missed 4 days of work. Doc gave me meds for dizziness and nausea, which seems to be helping. Thought maybe i had picked up a virus or maybe had some ear equilibrium issues or both, doesn't really know. i feel much better this week. my hemaglobin at week 24 is 13.5. Doc is amazed and so am i, because i'm just so utterly fatigued. He said "if you didn't tell me you were taking your meds and i didn't believe you, i'd say you weren'ttaking them, because your labs are so good for 24 weeks, usually people are very anemic at this stage" Trust me, i take every little stinking pill, every single day. Only my white and nuets were below normal , but not too bad. i know i am lucky.
Wednesday, August 22, 2007
Monday, July 16, 2007
Week 21
~waves~
iam still alive
Barely got out of bed this past weekend. Treatment takes a toll on my energy. Saturday i was weak and nauseaous. Sunday extremely tired to the point of not wanting to move. My blood counts are going downhill slowly, but still in range, except for my white count. So just taking things easy. Going to the bathroom and back is like running a marathon on weekends. It's about all i can do to get to the finish line. Saturday and Sunday are my worse two days. Saturday i am plain psychotic, including bouts of paranoia and feelings of abandonment. The abandonment is me thinking i'm so misirable, why would anyone want to be with me. i have good support and really not need feel that way. Good thing that only lasts a day. Sunday i'm exhausted from being crazy on Saturday. Then my week starts all over again and i go to work the next 5 days. i do my shots on Friday so i will be home for the two bad days i get each week. Continuing to work has been a big struggle, but i do it because if i was home i'd stay in bed all day. That can't be good for anyone. Hopefully i don't get to that point but if i do, i do. If i never get out of bed i couldn't survive tx. i have to push myself to do it. Oh i came to work today, grabbed the back of my hair and snipped off 5 inches. Hair is now few inches below shoulders. i couldnt stand how straggly it has gotten. It has been coming out so fast that i decided i could have less tugging each morning if it was shorter. It's very curly so lots of tangles. Less length should help with the snarling and snagging of my comb. i go today to a retina specialist to have a dark spot checked near my retina. Found on a routine eye exam last week. Wonder what's next. One day at a time.
iam still alive
Barely got out of bed this past weekend. Treatment takes a toll on my energy. Saturday i was weak and nauseaous. Sunday extremely tired to the point of not wanting to move. My blood counts are going downhill slowly, but still in range, except for my white count. So just taking things easy. Going to the bathroom and back is like running a marathon on weekends. It's about all i can do to get to the finish line. Saturday and Sunday are my worse two days. Saturday i am plain psychotic, including bouts of paranoia and feelings of abandonment. The abandonment is me thinking i'm so misirable, why would anyone want to be with me. i have good support and really not need feel that way. Good thing that only lasts a day. Sunday i'm exhausted from being crazy on Saturday. Then my week starts all over again and i go to work the next 5 days. i do my shots on Friday so i will be home for the two bad days i get each week. Continuing to work has been a big struggle, but i do it because if i was home i'd stay in bed all day. That can't be good for anyone. Hopefully i don't get to that point but if i do, i do. If i never get out of bed i couldn't survive tx. i have to push myself to do it. Oh i came to work today, grabbed the back of my hair and snipped off 5 inches. Hair is now few inches below shoulders. i couldnt stand how straggly it has gotten. It has been coming out so fast that i decided i could have less tugging each morning if it was shorter. It's very curly so lots of tangles. Less length should help with the snarling and snagging of my comb. i go today to a retina specialist to have a dark spot checked near my retina. Found on a routine eye exam last week. Wonder what's next. One day at a time.
Monday, July 9, 2007
week 20
i'm irritated. nothing in particular, i just am. maybe tired of being sick and tired of being sick and tired. i suppose that's good... in that it means i'm not dead. Has anyone ever died from stagnation...a slow wallowing in the mud like a pig, day after day, nothing productive, nothing creative, just exsist, just are. no motivation. No energy. Take it or leave it, who cares, wake up tomorrow and do it all again, trudge on.
Monday, June 18, 2007
week 17
Wow mid week 17 already? Times flying! Will be half way there at week 24 before i know it! Maybe i'm having to much fun playing with my man (he is so cute, lovable, sexy, sweet, kind, gentle, perrrrfect.....wanna puke yet? hahahaha) to notice the weeks flying by. Of course i come to full attention when the pain deep in middle of my right thigh bone seems to scream at me :) one ring finger on right hand and one toe on right foot throbs too. I get the strangest symptoms in the weirdest places. And oh yeah, the hair, thats another story. May let him shave me bald and put in some long dangly earrings like Sinead O'connor NOT!
Tuesday, June 12, 2007
Week 15 and 16
Everything is going really well. No rash, rage, depression, illness that i experienced early on.i do have some bone pain in feet and ankles still, that gets bad day after shot and some fatigue that seems quiet managable, but all in all i feel great.
Monday, June 4, 2007
Saturday, May 26, 2007
Week 13 and 14
tic toc tic toc...... still waiting for PCR blood work that was drawn last friday, end of week 12. WAITING DRIVING ME CRAZYYYYYYYY! Week 13 was uneventful except for the bone pain in ankles and feet. Did jab 14 last night and it bled a lot. i think i hit a blood vessel. Also forgot to push air bubbles out of syringe first.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
i had to step into the jungle just to get my solitude.
i need some juju and i don't know what to do.
i'm tired of seeing clouds when all i need's a drop of rain.
i've got my cuts and bruises, now i'd like to feel the pain.
if the spirit moves you,
if the spirit moves you,
if the spirit move you ,
please won't you, please wont you, send her to me.
well, how do you do that majic?
whats the secret?
whats the spell?
i tried to work it, but i just can't do it well.
i know i'm lucky to be in the jungle doing what i please.
i got my birds, i got my buds, i should just get down on my knees
pleaseeee
if the spirit moves you, if the spirit moves you
if the spirit moves you ,please wont you send her, please wont you send her, please wont you send her to me
send her to me, send her to me
~The Woods Brothers~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
i had to step into the jungle just to get my solitude.
i need some juju and i don't know what to do.
i'm tired of seeing clouds when all i need's a drop of rain.
i've got my cuts and bruises, now i'd like to feel the pain.
if the spirit moves you,
if the spirit moves you,
if the spirit move you ,
please won't you, please wont you, send her to me.
well, how do you do that majic?
whats the secret?
whats the spell?
i tried to work it, but i just can't do it well.
i know i'm lucky to be in the jungle doing what i please.
i got my birds, i got my buds, i should just get down on my knees
pleaseeee
if the spirit moves you, if the spirit moves you
if the spirit moves you ,please wont you send her, please wont you send her, please wont you send her to me
send her to me, send her to me
~The Woods Brothers~
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